Researchers in all domains must consider ethical and legal issues in planning their research, but it is even more important in personalised health, where the risks of data exposure are especially severe.
SPHN and BioMedIT provide support on ethical, legal and social implications (ELSI), especially related to agreements for the transfer, processing and use of data. This support is intended to directly assist SPHN projects and provide additional support to other related initiatives. We are also working on longer term projects to build community maturity around ELSI issues. Full information can be found on the SPHN website, or in our introductory video on legal agreements.